Patients’ stories

This section is dedicated to testimonials. There are 100% anonymous. If you would like to testify, could you include the following information to make your story most useful and impactful to the community:

  • Date of infection
  • Mode of infection
  • Symptoms of the primary infection
  • Current symptoms

Each story will allow infected people to feel less alone and above all to convince medical authorities that behind these testimonies, there are real people suffering.

Remark: to add a story, please post it by leaving a “reply” at the bottom of this page.

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Mark (UK, infected in 2014)

10 years ago I had an innocuous sexual encounter with a stranger. A few days later, I started to experience burning and discomfort in my groin, which progressed to pain running down my legs, and then – over the coming weeks – all hell broke loose: red eyes, night sweats, rashes, scalloped tongue, burning skin, and more.

Over the following years I started to develop cracking joints, skin thinning, severe GI issues, chest pains, neck cracking, muscle spasms, belly weight gain, osteoporosis and an endless array of other symptoms.

Now, 10 years on, my health is rapidly declining and multiple organs show damage such as calcifications and nodules, and I have been diagnosed with numerous infections.

I have sadly passed this on to family and friends, who suffer with an array of symptoms (particularly related to fat loss, joint issues and hormone imbalances) though the symptoms are not as severe as mine.

Gondokingo (Japan ; infected in March 21)

Im 33 from Tokyo. Contracted this disease in March 2021 through oral sex with a CSW. My symptoms are very close to the Chinese unidentified disease Yinzibing (negative aids). One week after exposure i got discharge from my urethra so i suspected a common STD but all tests came back negative. Antibiotics stopped the discharge but another week later, i got a 40 degree fever with swollen lymph glands. Then my tongue was coated by thrush which was not candida. I suspected HIV but was negative after 4 tests within 6 months. Since then the following symptoms appeared:

・chest pains ・spine pains ・heal pains ・tingling white tongue ・sore roof of mouth ・jumping muscles ・constant cracking joints ・acid reflux ・congested throat ・loose stools/ diarrhea ・itchy anus ・fatigue ・decrease in vision ・low grade fever ・anxiety, depression, anhedonia ・insomnia ・night sweats ・black spots on teeth

My current symptoms are tingling white tongue, congested throat, sore roof of mouth, fatigue, decrease in eyesight, cracking joints, loose stools, difficulty breathing, and low grade fever. I am managing my mental symptoms with SSRIs. I’ve been to several hospitals and ran many tests but nothing seems to be wrong on paper so doctors say I’m fine, even though i clearly have symptoms. There is nothing I can do but to pray for medical advancements and a cure. I hope this disease is non lethal.

ATPARK (Infected in May 2021)

My name is “Park” im in my upper 30s. I contracted this “thing” in May of 2021, so have been dealing w various symptoms for about 8 months. My initial symptoms were slight sore throat, fever, rashes, white tongue, burning mouth sensation, anxiety, major brain fog and my vision was not clear. I’ve also had red eyes since. I contracted this via non-intercourse sexual contact/kissing. I am currently feeling much better than I did this past summer.

Figs (USA ; Infected in 2009)

My name is john I’m from America, I was first infected 13 years ago after receiving oral sex from a sex worker, immediately following that encounter I started experiencing flu like symptoms,throwing up,pain /burning foreskin,sore on roof of mouth (that never healed),white and burning tongue,night sweats,shortness of breath and other symptoms. After 1st year most symptoms subsided until year 10 when they started to come back and as I go into year 13 I find myself with very bad symptoms mostly in the head exp:brain fog,memory loss,anxiety,ocd,headaches,neck pain,painful red eyes. Hoping for a cure/answers.

TM20M034

I’am 30 years old, contracted it on a business trip in milan – how? i have no clue. My initial symptoms were night sweats, diarrhea, blurry vision, tingles, numbness in hands, muscle pain and so on. now acne, rashes, with tongue, cracking joints. i am only 2 months in and my symptoms were/are not that severe.. let’s see.

LTsufferer-nfl (UK ; Infected on 03/12/1995)

This is my story. I got infected in London 26 years ago (03/12/1995) through sexual contact. About a week later I had a pain in my penis which moved into my testicles then my pelvis. This is when all hell broke loose and I had a load of new symptoms: night sweats, brain fog, anhedonia and lots more. I couldn’t work anymore. I consulted an std doctor who performed a number of hiv tests at my request- all negative. I then went to John Hopkins hospital in Oxford for a complete std screening , again nothing found. I was ill for about 5 years then started to get better until I was almost back to normal. Then, after 13 years I got shingles and had a terrible relapse which prevented me from working for just over a year. Again I improved until year 24 when I had another relapse which, after two years seems to be getting worse. My main symptoms now are painful glands, difficulty breathing, tiredness, fatigue and difficulty sleeping. I also have a painful penis, testicles and pelvis. I have tried everything suggested by the group but nothing seems to make any difference. I would like to try PrEP drugs but I don’t know how to get hold of them. My lymphocytes are now extremely low, especially cd8

DeThomas (Infected on 28/04/21)

Hi, my name is Karl and I’m 26 years old. I was infected on 28th of April 2021 trough a high risk sexual behaviour (MSM). At first when my symptoms started (1-2 weeks later) i immediately thought that i’ve contracted HIV. Acute symptoms were: lymphadenopaty, skin redness, redness in both eyes, extreme fatigue, nausea, complete apetite loss. Over time, symptoms are changing and ones that are currently active are: lymphadenopaty that comes and goes and is switching locations, pink papules on skin of trunk, fatigue. I have had multiple HIV tests : ~25. Most of them were Ag/Ab. 5 months after exposure i had a weakly reactive/unclear rapid antibody test which was overruled by another rapid antibody test, Ag/Ab and RNA-PCR. The person i had sexual contact with was tested twice for HIV, the results being non-reactive. Apart from HIV, i have tested for: HCV (2x) ,Syphillis (10x) N. Gonorrhoea(2x), C. Trachomatis(2x) and Trichomonas. I was not reactive on EBV, CMV, Antinuclear antibody test. I am vaccinated against HBV. To this day i do not know what have i been infected with and i really do hope i find out soon.

Fransh (infected on 18/01/20)

Hello, my name is Francis and I am 35 years old and I was infected on January 18, 2020 with a call girl, in this relationship there was no oral sex just normal and totally safe sex and the next day I started to feel pain behind my eyes and a burning on the face and chills good I had all or almost all the classic hiv symptoms and I took several tests for hiv these as – rapid antibody test, hiv 4th generation test and nat hiv test all negative with more than 1 year of tests and today I have armpit inflammation , sore throats that keep coming back , headaches , pain in fingers and joints . I hope to someday live my life again thank you .

Molight (Infected in February 2021)

Hello Everyone, I hope everyone is doing well. I’m really bad at these as i forget to add all the relevant information. I caught this disease in February of 2021, coming up to a year. I went to 2 escorts and had protected sex / unprotected oral (pretty sure i got it from the oral). 3 weeks after the exposure, i experienced flu like symtoms like people mentioned above. At first i thought i had HIV as all the symtoms matched to my symtoms. I got several tests done, looking for all kinds of stds but nothing came up positive. At this point, I was experienceing white tongue, loose stool, fatigue, cracking joints, anxiety, depression and several other symtoms. As of now my biggest symtom is hypertension in my feet, i can literally feel the blood pulsing in my feet 24hrs a day. I have spread this disease to my whole family, who are suffereing daily. My father coughs non stop, my sister is tired all the time and spends most of the day in bed and my mom is experiencing pain all around her body. Because of my actions my family will suffer for the rest of their lives.

Sebass (USA ; infected in February 2020)

Hey guys, I would like to share my story. I contracted this in a vacation trip to Puerto Rico by having sex with a girl that I matched on tinder. This was 2 years ago. Right after having sex w her I felt very depressed and the very next day I wasn’t hungry and I was feeling low. Then after a week is when I started feeling dizzy and having dry mouth then after 2 weeks is when I started having loosing stools, bed ridden, blur vision and many other symptoms that I don’t even remember…so I thought I had hiv. I tested multiple times w negative results. I have done many testings of all kinds and nothing besides some low cortisol and Lyme positive which I know this shit is not Lyme because I have all you guys symptoms. Good thing is that my symptoms went almost away after the 3 months mark but now I deal with some tiredness and I haven’t being the same since before the encounter. I’m also loosing hair and I feel like I’m getting older quicker. I have done many protocols like with antibiotics and shit but they worked for a few specific symptoms but after stop taking them I noticed they would just come back. I’m much better now but I’m afraid of relapsed

WhenYouBelieve (USA ; Infected in May 2018)

Hi there, I think I got infected in May 2018, mild symptoms at the first few months: slight high temperature in late afternoon and fatigue; but after 10 months severe symptoms appeared: nausea, white coated tongue, cracking joints, fatigue, gum inflammation, blocked throat nearly most of the symptoms mentioned in the website. Visited doctors for more than 10 times and tested negative for all existing virology. Felt better after 2020 but fatigue, white tongue, cracking joints are still there. Hope capable researchers can help study the mechanism of this disease and looking forward a cure. Thanks

Ismailovetch (Infected on 27/07/21)

Hello, I was infected on July 27, 2021 following oral sex received fellatio and friction from sex without penetration on June 25, my symptoms are fever vauming cold sores inside my mouth a big fatigue and a white tongue swollen glands and diarrhea the next day, I tested positive for covid I lost my sense of smell and taste and negative for HIV rapid test and I have been suffering since July after I did 9 serology the last and made on December 25 negative and a viral load test absence of detection of hiv-1 precision 20 copies of virus. after I had color vision changes and sensitivity to light sinusitis and many other symptoms I did a lot of hiv test hepetite A B C lyme disease CMV and herpes syphilis Chlamydia and gonhorea all negative for herpes I tested positive for hsv-1 IGG and IGM. for CMV I tested positive for IGG but negative for IGM.

Jd612r (USA)

Hey there, I’m 26 years old. From the US. My exposure was with a massage therapist/CSW in Kansas. Dumbest $100 I’ve ever spent in my entire life. Had basically non penetrative sex. She rubbed lotion on her vagina, then rubbed lotion on my penis and rubbed her vagina up and down on it till I ejaculated. No penetration what so ever. Still pretty risky. Not in the doctors opinion though. Went to the ER 60 hours after encounter to get PEP. Wouldn’t give it to me, risk wasn’t high enough for them to give it. Two days after exposure, Anxiety was running wild, burning sensation in my neck and shoulders. Diarrhea came next, for a couple days. About 2 weeks post exposure I got the worst sinus infection I’ve ever had that would not go away until I finally got onto some antibiotics. This obviously terrified me because I thought well that was my seroconversion. I tested negative AB/AG at 12 days, right before the sickness. Tested again once I was over the sickness at 28 days, negative. Tested again at 45 days, negative. I decided to move on because everywhere you read says a one time exposure post 45 day negative for hiv is conclusive. So my wife and I started having unprotected sex again, huge mistake. About 60 days into this nightmare, she got the classic ARS symptoms. Naturally, I freaked out and started testing again. I lost my appetite, aches and pains everywhere, lost damn near 50 pounds, the brain fog just debilitates me. It makes it extremely hard to get through a day of not only work, but even on the weekends just hanging out. I misread so much stuff, forget what I was doing, it’s like my motor skills have slowed as well. I don’t react to things near as quick as I used to. Those are the big ones now. 120 days post exposure, not detected HIV-1 PCR, not detected AB/AG, negative syphilis, negative for all Hepatitis. Now I’m just trying to figure out how to keep my marriage together, and keep the business I own a float.

Joey1212 (Infected in July 2021)

I had intercourse 8 months ago, 2 weeks after that I had all symptoms : fatigue, tingling all body epecially my feet , lost 20 pounds , lack of energy , consitipation, white tongue ,tummy problems , anus pain, low grade fever, and a lot more, the first 5 months felt like death . I did all ab/ag tests at 4 months everything was normal,my intercourse was protected though, my doc put me on mirtazapine, after 5 months I started to see some improvements . I started to eat I regained my weight even more weight , my only symptoms now is fatigue and low grade fever which are milder than before . Few weeks ago a contacted the woman I had intercourse with and she said she doesn’t have any sikness and her tests are updated , also said she never had any complaints from any guy she was with before. What derives me Crasy is is she is healthy, what all these happened to me through this months ? Is it all in in my mind or what

That_one_guy (USA ; Infected in January 2022)

Hello, I’m 25m my exposure was end of January. Condom broke at a happy ending. 3 weeks later it all started with testicle aches that lasted only 5 days. Here came the chronic fatigue for 2 weeks. Then came the constipation followed by diarrhea/loose stools with mucus in my stool. And over the last 2.5 months I’ve experienced dry mouth, swollen glands in neck, muscle twitches, weakness in arms/legs, constantly clearing my throat, chapped lips, pimple like rash on chest, itchy pubes with some redness that comes and goes, burning sensation in mouth and on my arms and bottoms of feet, my body feels like it’s vibrating when laying down, night sweats, trouble sleeping(insomnia). The depression and anxiety really sucks. My CBC is all normal, I’m deficient on vitamin D(19ng/ml). Started taking supplements along with magnesium. All std screens come back negative. My doctor gives me clean bill of health regardless of all my symptoms. I’m in the US

Undefinied (Brazil, Infected on 27/10/21)

On 10/27/2021, I was sexually violated by an person at a party, I didn’t know him, he was friend of a “friend”. After that relationship my life became hell because I found out after all from his ex that he was a friend of this colleague that he had herpes and so even though I was gone, I went to the hospital for infectious diseases in my city. I took the pep correctly and I remember that on the second day after starting pep I already had petechiae and in the same week I had folliculitis. The symptoms only got worse because it’s been 7 months since it happened and I feel all the things someone with hiv would feel. The symptoms listed are: lipoatrophy My hair has gone through an intense fall that has never fallen out before. He falls a lot. I went to the dermatologist and she just prescribed psoriasis medication that I never had. Mouth ulcers joint pain Belly with strange noises Joints creaking all the time Lymph nodes that have lasted 3 months relapsing folliculitis Lymphocytes are high on the blood count There’s so much I don’t remember The point is that, through justice, the person in question presented negative fourth generation tests for hiv. I try to relax and go on with life from the first negative test, but every day, every DAY, something new comes along, you know? That’s 7 months of non-reactive results including pcr. but this person doesn’t have hiv, and he doesn’t feel symptoms either. I also tested htlv. non-reactive

Meechielive74 (Infected on February 2021)

I’ve been going through some problems every day since I had sex with someone on Feb 6 I’ve had a rash under my eye after two weeks from that date and the rash went away two weeks later then I got chills and night sweats that eventually stopped I also have white tongue and now I’ve lost a lot of muscle and weight I’m having abnormal stool which I was diagnosed with giardia a parasite in the intestines and I’ve tooked antibiotics for it and that didn’t do me any good still going through the same problems my toe nails and finger nails are starting to look like they are turning yellow I have a cough and I sometimes cough up white mucus…I’ve been testing for 5 months straight so far I’ve tested 6 times 4 4th generation ag/ab test and 2 3rd generation ab test they all have been negative and HIV 1 RNA PCR test negative

Yasserkhaleefa

i had protected vaginal intercourse once at day 0 , yet the condom was torn at day 17 i felt some chills , fatigue , myalgia , then i started to feel pins and needles till now with some muscle twitches , arthralgia and some bone pain comes and go No fever , no sore throat, no headaches , no lymph nodes , no mouth or penile ulcers, no headache As regarding tests : – i made HIV 1 RNA PCR at day 23th and 57th and non detected (done on biggest lab in my country COBAS ampliprep). – i had westernblot test at 50th day and was negative for all 7 bands (including p24) – I did combo tests at 45th day , 79th day and 91th day and all are negative. – I made CBC ,Thyroid profile , ANA , RF .. all are negative , ALL other viruses hep b , c , a negative ,,, yet CMV and EBV IGG positive , IGM negative. Vitamin D low 15 ng/ml (n above 30) , and low potassium 3.26 ( n above 3.50). what is your opinion please , i need help

Cal067 (Europe ; Infected on June 22)

Hello all, I Received unprotected oral 3 months ago. Did every possible std test since then, all negative, I received doxyciclin for my unknown bacterial infection, that cleared me out in a week, I regained hope. But then around a month later my muscles started having pain, my kidnes my lower back m spine, my belly.. Ive been visited a lot of doctors already, did blood tests I seemed helathy and they say I need to take care of my mental health because thats causes the problems. Now Im in 3rd month but my parents started caughing and muscle pains as well.. thats how I know that it is something which apreads easily. I did not find anything but this channel finally..

I started to take vitamin b and d, which resolved a lot of my pains (milgamma-n and d-3 vitamin drops)

I have approx 24 papers from doctors already which says Im healthy but I feel that I am not.. I have approx constant chest pain on m right side and muscle pain in my back with a slight head ache. My latest blood test is about immunsystem markers: I will share my results here.

I also read maybe thats why milgamma-n helped that B vitamins boosting helper T cells, which is probably this virus is corrupting since its plays a major role on immune system normal work

ParkMonster (Thailand ; Infected in May 2022)

Hello all , 4 months ago, I had protected vaginal intercourse and tongue kiss with a stranger. Since then, many symptoms have appeared on me, such as muscle twitching, muscle pain, joint pain, pharyngitis, hair loss and so on. My family seems to be infected. During this period, I have tested all the sexually transmitted diseases that can be checked, and they are all negative.

Alig

36 y/o F with history of long COVID. After staying in an air Bnb my whole family came down with upper respiratory symptoms followed by small pustular rash that was followed by months of hell. We’ve suffered from encephalitis like symptoms (stiff neck, burning brain, neuro psych symptoms), fully body muscle fasciculations, sore throat, intermittent fevers, extremely itchy face/nose, pustules on scalp, face, and dispersed throughout body. My vision is deteriorating. I have shortness of breathe, insomnia, swollen tastebuds, headaches, jaw pain, hair loss. This virus killed my moms house rabbit, spread to my cat and cause corneal ulcers and white opacities. All tests negative including monkey pox, COVID, hsv, hiv, syphillis, coxsackie, varicella and more. I participated in one research study that said Monkeypox was actually detected in my lesion swabs but I don’t know if this can be trusted as I had so many negative ones before. My 2 year old kid has the same symptoms.

Wh (China ; Infected on 01/07/2021)

On July 1st, 2021, I had sex with a sex worker. Take HIV blockers for 29 days on July 3, 2021 During the period, symptoms such as dizziness, fatigue, low fever, diarrhoea, white and thick skin rash, lymph node pain in the front chest, back and neck of the face, small red bleeding spots under the skin, etc. Many pimples appeared on the inside of the mouth and lips, which have not subsided yet. 7.14 syphilis and Hiv antibodies were negative Finish taking the medicine on July 30th. The headache, low fever and rash have not subsided. August 6th Antigen-antibody negative HIV DNA negative Monocyte percentage MO% 8.80↑(3-8%) Creatinine 97.9 ↑(57-97umol/L) Uric acid 515.0 ↑(202-416umol/L) August 23rd Antigen-antibody negative HIV DNA negative Creatinine 112.1↑(57-97umol/L) Uric acid 426.0↑(202-416umol/L) The average platelet volume is 9.20↓(9.4-13fl) August 31st Creatinine uric acid returned to normal. November 23rd HIV antigen-antibody negative 2022 Skin symptoms continue to appear, such as pus on the face, chest, back, big arms, pimples and boils on the legs. The location and frequency of joint snapping increased. The symptoms of lethargy and dizziness increased in the second half of the year. October 5th Syphilis and HIV antibodies were negative. October 15th to Sunday, dizziness, fatigue, white and thick tongue coating, gastrointestinal agitation, ringing, wet stool, digestive system problems, swollen tonsils, joints, bouncing muscles and beating. Until now

Chinese patient

I am a person infected with an unknown pathogen from Jiangxi, China. I am 33 years old this year. I had a high-risk condom sex in March 2013. The other party kissed my nipple. After 7 days, I developed a rash, headache, fever, mouth Dry mouth, bad breath, white fur on the tongue, oral ulcers, fatigue, oily skin, blood spots under the skin, diarrhea, borborygmus, easy hunger, skin pressure marks, swollen lymph nodes, joint ringing, bone tingling, muscle twitching, muscle aches, nighttime Night sweats, numbness in hands and feet after sleeping easily, insomnia, dreaminess, blurred vision, dozens of symptoms, AIDS antibody test for more than 8 times in five years, all negative. The mental factor mentioned by the CDC, I went to see doctors everywhere, the major hospitals could not explain my problem, the test results were all normal, I also saw a psychiatrist, and also treated in a neurological hospital. After seeking medical treatment for a period of time, most of them were found. Doctors in all the hospitals couldn’t solve my problem. Finally, a doctor in disease control told me to go home and rest for a while. I listened to the doctor’s words and went home to rest. A terrible thing happened to me. Through daily contact, I found that my wife and children had similar symptoms to me. Only then did I understand that this disease is a serious infectious disease. After five years of understanding me I am very responsible to tell you that the acute stage of this disease can be infected through saliva, sweat, blood, and daily life. After a few years, the infectivity gradually weakens. This patient is zoonotic. The first infection belongs to the acute stage. Stable period, and then the onset period, some patients have low immunity leading to the occurrence of cancer. When they were first infected, they were in great pain, and the problem could not be found. Through inspection, I found that the organs were changing after three years.

In 2017, I checked through scientific research institutions. reverse transcriptase, the indicator is 3 times that of normal people, and cyclophilin a shows that the inflammatory reaction in my body is 10 times that of normal people. At present, my whole family has been infected. This kind of painful mood is beyond the experience of normal people. It doesn’t matter if I get infected, I just wait for death, but my only child’s family members are also infected. I really don’t know what to do. I don’t want them to suffer the same mental pressure as me. From my understanding, there are still many infected people like me in China! Most of them don’t know that they are sick, and they walk around in major hospitals to see illness, I went to Beijing again for the health of my family. On March 5, 2018, I went to Peking Union Medical College Hospital to see a certain expert. I told the expert the situation. The expert said, young man, I believe that you are not mentally affected, and I sympathize with you, but I can do nothing! Thank you very much for the doctor who can tell me so much, no For example, disease control doctors know about mental factors. For an unknown pathogen, I can only report it to the national disease control. I went to Beijing for disease control and response to the epidemic around August 2013. Not only did I not pay attention to it, but I also talked about mental factors, and asked the police to maintain stability. Take me back to my hometown, we also went to the Central Inspection Team, the State Council, and the Health and Family Planning Commission. I didn’t expect to live in such a country. Since infectious diseases conceal the epidemic, let the disease indulge and hurt more children. Although I am ill, I will definitely try my best to make the relevant departments pay attention!

A. (Russia ; Infected in 2015)

My name is A. I’m from Russia. Infected in 2015 after unprotected vaginal intercourse. Burning in the urethra came the next day. The hospital was diagnosed with: ureplasma and Gandarella vaginalis. Сourse of antibiotics was taken, which did not give tangible results. pain in the inguinal region lasted two months and stopped by the time of the onset of the acute phase of the disease. Exactly 2 months after infection, I wake up with a very severe headache, a feeling of numbness in the internal organs. The cervical and inguinal lymph nodes also swell, a painless crunch of all joints begins, mouth ulcers and many other symptoms. Fordyce granules appeared on the lips. There are a huge number of new moles, red dots on the skin. I was hospitalized in an infectious disease hospital from which I was released a week later, saying that the tests were all clean, and I had to wait 2 months to completely exclude HIV. A few months from this moment, I begin to notice similar symptoms in my parents. After a couple of months, the cat gets sick. Leukocytes in the KLA are close to zero. They diagnosed feline leukemia but did not find the virus itself. The cat was euthanized. After 2-3 years, most of the symptoms receded. At the moment I have problems with weight gain, chronic lymphocytosis, eosinophilia and neutropenia in the blood test. Hair loss, chronic candidiasis. In general, I have made great strides in antibiotic treatment and apitherapy. In Russia, some scientists, on their own initiative, made attempts to isolate the pathogen, which, unfortunately, did not lead to anything.

Beatriz (Brazil ; Infected in 2022)

Two weeks after unprotected intercourse I had diarrhea, mental confusion, headache, sore throat, weakness, canker sores, stomach and liver pain, neck stiffness and neck pain. I currently have a lot of pelvic pain, discomfort in the private parts, headache and weakness. That’s 7 months ago.

Seloninka (Turkey ; Infected in 2021)

I had sex with someone for the first time. I bled. After 2 weeks, my lymph nodes were swollen. generalized. then i just had a speckled rash on my hands. I have swollen gums. and they still continue. My problems continue for 1.5 years

Bia (Brazil ; Infected in 2022)

I’m from Brazil. I was infected in July 2022 by a man, unprotected intercourse because he took the condom off. The next day I felt a lot of itchiness and burning in the intimate area, and the itch lasts until today, in less intensity. Two weeks later I had a headache, fatigue, moles on the skin, pelvic pain that is still there today, changes in the cervix (cervicitis), mental confusion, weakness, stomach pains and noises, a bone was born in the sky of my mouth and I have a lot of canker sores. The symptoms that last until today are indisposition, headache, muscle pain, chest pain, arrhythmia, hair loss and a lot of pelvic pain and discomfort in the intimate parts. I hope you find out what that is.

Onezk (Brazil ; Infected in 2021)

I was infected in 2021 after receiving oral sex from an unknown woman, I was never healthy again

Dirk (USA ; Infected in 2021)

I had unprotected oral sex and protected vaginal sex with a new girl who blocked me on everything afterwards I have no positive tests but constantly feel like I’m losing it I feel weak going on 2 years now and I worry I’m going to die

59 thoughts on “Patients’ stories

  1. I have the same symptoms. It’s been 4 years. Feel like I’m getting sicker and weaker. All test negative. don’t know what to do anymore.

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  2. I’m really tired. very much want to die. 1 year with itching in the vagina and anus. an unbearable itch ONE YEAR!!!!!! You are our only hope. I’m desperate. living is being horrible. I’ve had a sexual partner my whole life! We broke up and I decided to meet another guy and this happened. that is very unfair!!!!! I was just in a relationship and would be my second sexual partner. This is unbelievable. I always took care of myself. The boy I related to doesn’t feel anything 😭😭😭😭😭😭😭 HELP,PLEASE!!!!!!!!😭😭😭

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  3. Здравствуйте! Дело в том, что у нас есть неизвестная кишечная инфекция с 2013 года. Симптомы: непереваренный стул несколько раз в день, хруст и боль в суставах, чувство прострации, мигрень, мышечная слабость, сухость лица, специфические синяки вокруг глаз и синякие вены, птоз лицевых мышц на поздних стадиях. Ранее жена была полностью вылечена за три дня с помощью режима антибиотика ,противовирусного с иммуномодуляторами. Меня также лечили по этой схеме, но инфекция стала носителем. Затем жена снова заразилась. Препараты больше не помогают, выработалась приобретенная развилась резистентность. Мы пробовали много антибиотиков, но эту инфекцию не удалось вылечить. Возможно, проблема заключается в вирусе, к которому присоединяется бактериальная флора. Грибы и простейшие с гельминцами были исключены (вориконазол, метронидазол и гельминты не помогли). Да, дело в том, что никакие врачи не могут помочь с этим вопросом … возможно, что это либо в целом, либо в редкой комбинации вируса / бактерии, так как определенные антибиотики помогают при хрустах и болях в суставах и мигрени, но стул настолько непереварен и остается, из-за чего бактерии не достигают и начинают развиваться снова … есть предположение, что это стафилококк + неизвестный вирус, так как помогли большие дозы стафилококкового бактериофага (мигрени и синяки под глазами), как цефуроксим … Скажите, есть ли в вашей клинике высококвалифицированные специалисты в этой области для редких кишечных инфекций? Вероятно, потребуется сделать полный метагеном кишечной микробиоты и прокол из сустава для полного метагенома. Скажи мне, ты можешь это сделать? Вы занимаетесь секвенированием ДНК?

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  4. Я с этим заболеванием столкнулась в 2017 году. Вот 5,5 лет плохо чувствую себя. Некоторые близкие и друзья тоже стали жаловаться на здоровье. Это ужасно….

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    1. Hello Girl, can you describe in a couple of sentences how did you get contaminated, what were and are your current symptoms, and are you still contagious?

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      1. Привет. Целовалась и можно сказать, незащищеный половой контак. Острая стадия явная началась через 2-3недели. Это было сильная утренняя усталость, потеря веса на 5 кг, тошнота, температура 37, 5, диария… Через 2 месяца после риска начло хронического течения. Это боль во всех лимфоузлах, боль в суставах, тошнота, температура, жжение рук и ног (нейропатия), крапивница, сыпи на лице, зубы портятся, папиломы появились
        Через 5 лет вижу у подруг нечто схожее, у людей близкого круга я вижу жалобы на самочувствие.. Схожие с моими симптомы(((

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  5. OLÁ SOU DO bRASIL. ERA VIRGEM E TIVE UM COTATO SEXUAL ( ORAL RECEPTIVO) SEM OUTRAS RELAÇOES . COMO CONTATO FOI EM 20 DE SETEMBRO DE 2022. COM CINCO DIAS DEPOIS SENTIR MEU PENIS ARDER E COÇAR BASTANTE E FICOL IRRITADO. DEPOIS DE ALGUNS DIAS ME DEU COCEIRA NO CORPO. E DEPOIS PINTAS VERMELHAS COMO DE MOSQUITOS. E ESPINAS EXTRANHAS. FIQUEI PREOCUPADO E COM 2 MESES FIZ TESTE RÁPIDO NO POSTO NEGATIVO. RELAXEI. MAS OS SINTOMAS PERSISTENTES, FIZ EXAMES DE ISTS DE 4 GERAÇÃO NEGATIVO. COMEÇOU A TORMENTA FIZ PCR DEU NEGATICO COM 4 MESES DEPOIS. OS SINTOMAS DOBRARAM. REFLUXO Q NUNCA SENTI NA VIDA, AMIDALAS INCHADAS E UM ZUMBIDO QUE NAO PASSA. É ASSUSTADOR. TENHO FESES MOLES E BARULHO NO INTESTINO E QUEIMAÇÃO NAS COSTA E OMBROS E AS VESES NOS PÉS. A PESSOA QUE ME RELACIONEI VIVE BEM. ISSO PODE SER MUITO TRANSMISSIVEL A PONTA DE ESTÁ NA SALIVA E SER PASSADO MUITO RAPIDAMENTE. É UM MAL PARA HUMANIDADE. PRECISAMOS DE RESPOSTAS URGENTE DAS AUTORIDADES DE SAÚDE. ISSO JÁ DEVE TÁ NO MUNDO TODO COM PESSOAS ASSINTOMÁTICAS E SINTOMÁTICAS COM EXAMES NEGATIVOS E FAZENDO DOAÇÕES NOS BANCOS DE SANGUE. ALÉM DISSO ACREDITO QUE CONTAMINEI PESSOAS PROXIMAS. MAS NÃO SEI COMO…. AGUARDAMOS RESPOSTAS.

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  6. The answer of Chat GPT about fermentans and eye. Ask Chat GPT about you symptom,
    you will easily have some hint about fermentans. The best thing is to have a PCR test for fermentans.
    You may have some treatments for your symptoms. I myself have been taking Doxycyclin ,Olive Leaf Extract and VitaminC for more than 4 years.  Some doctor says it’s not good to take Doxycyclin everyday for such a long period of a time. And says It is not caused by bacteria, but rather a side effect of medication. They don’t know how terrible the fermentas are.  Any way I am still living but suffering from those symptom such as Headache, frequent urination, eye pain, joint pain, muscle weakness, weight loss, memory decline, tinnitus, double vision, decreased concentration, excessive sleepiness, cough, swollen lymph nodes, and various other symptoms. All of those are caused by fermentans. This is definitely true. Whether or not you believe it is up to you.

    Chat GPT says below

    The symptoms of Mycoplasma fermentans infection can affect various parts of the body, including the eyes. However, it is important to note that specific symptoms may vary from person to person. Common eye-related symptoms associated with Mycoplasma fermentans infection may include:

    Conjunctivitis: This refers to inflammation of the conjunctiva, the thin tissue that covers the front surface of the eye and lines the inner surface of the eyelids. It can cause redness, itching, irritation, and discharge from the eyes.
    Dry eyes: Mycoplasma fermentans infection may disrupt the normal production of tears, leading to dryness and discomfort in the eyes. This can cause a gritty or foreign body sensation and may result in blurred vision.
    Eye pain or discomfort: Some individuals with Mycoplasma fermentans infection may experience eye pain or a feeling of pressure in the eyes.
    Sensitivity to light: Also known as photophobia, this symptom involves an increased sensitivity to light. People with Mycoplasma fermentans infection may find bright lights or sunlight particularly bothersome.
    Vision changes: In rare cases, Mycoplasma fermentans infection may affect the clarity or quality of vision. This can manifest as blurred vision, difficulty focusing, or other visual disturbances.

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  7. I asked ChatGPT

    Mycoplasma fermentans is a species of microorganism belonging to the Mycoplasma genus, which has the potential to infect humans and animals. However, it is not yet clear if Mycoplasma fermentans is specifically associated with any particular disease or syndrome, as scientific research has not definitively established such a connection.

    Gulf War Syndrome refers to a collection of various chronic health issues observed among soldiers who participated in the Gulf War in the early 1990s. The exact cause and mechanism of this syndrome have not been fully elucidated, leading to numerous studies being conducted.

    Dr. Garth L. Nicolson is an American biologist who has conducted research on the association between Mycoplasma and Gulf War Syndrome. He has proposed the possibility of Mycoplasma infection being involved in the development of Gulf War Syndrome. Dr. Nicolson and his research team have successfully identified signs of Mycoplasma infection in blood and tissue samples, and they have also worked on developing treatment methods.

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  8. Can I ask how is the study going? Have you gotten any answers back from the bloodwork?

    If no answer comes back to me here, I suspect I was right

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    1. Hillbilly didn’t you say you were staring a doxycycline regimen? How are your symptoms now? How are you feeling in general?

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    1. Please see the slides on welcome page or join the discord. There are the latests information about the study. To summarize, we’re in contact with labs for pricing. More update by the end of the week.

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  9. Hey everyone,

    I contracted this disease in Puerto Rico in 2019 at that time I was only 21 years old. I had sexual intercourse with a CSW, I regret this night so much. It was sex with protection. Right away I felt something off with me like I was not feeling right and I just went to sleep early. That the same night I was having chills, it was like something was entering my body, soo weird. so the next morning I was not hungry at all. so after 2-3 weeks is when I still feeling extreme fatigue, losing weight, digestive issues and many other that I cant remember, after that It just became chronic. I have done multiple testing with out any results besides low cortisol. Be mindful that before this disease I was the healthiest guy a life, I worked out, played soccer and do muay Thai. I am still active but I just don’t feel the same since that night, I have became used to feel this way but I know this is not right. I just wanted to say thank you for creating this website and giving light to this horrible thing, it is a nightmare, no one could understand it unless they go through this.

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    1. Hello Chebas, so sorry to hear this terrific story. It’s is exactly the same story as all people suffering from this unknown sexually transmitted pathogen. Let me ask you a question: had you unprotected oral sex?

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  10. My nickname is rigor.. I became infected in September 2019, 20 days after being infected, my symptoms started with diarrhea, headache, muscle aches, blurred vision and continued for 1 year. and then it went away on its own. Exactly 3.5 years later, when everything was fine, it started again. now I am struggling with diarrhea, weakness in arms, face and legs, liver, kidney and muscle pains. My clothes have shrunk by 4 sizes. My immune panel is dropping. I’m going to lose the ability to walk soon because of my rheumatoid arthritis and crunching. what can we do other than spending the rest of our time with our loved ones 03.03.2023

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  11. Hello. Is it necessary to invest financially to participate in the initial study? I am interested as I am quite sick. Or is it something we should volunteer for?

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    1. As we’re not supported yet by any medical institutions or government, the study will be privately funded… In other words, each participant will have to pay the costs. We know this is not an ideal situation but we cannot do any other for the moment…

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  12. if this is really a virus, how can a virus spend 15, 20 years in the body without causing anything serious? because there are people who claim to be infected for years. strange and hard to believe it is. look at covid, hiv. no one can last that long with a virus.

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    1. Two important things here: 1) we do not know if it is a virus or any other type of pathogen… The study should allow us to know more about this. 2) Do you have contacts with people having this unknown pathogen since 15 years +? We do and we can say, based on medical facts (one fact out of many others: reactivation of viral activities such as EBV/CMV with major neurological side effects…). So as a conclusion, they are not healthy at all… and remains contagious.

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    2. There are so many virus and bacteria which lives in human body. Some doesn’t make any symptoms but lives with us.

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  13. I got this in China in 2016 my first symptoms were rashes ,white tongue,weight loss,dull face like the girl I had sex with .I think yinzibing is different because all chinese patients have rashes on the back.symptoms subsided little after three years but got severe different symptoms like pain in wrist,stomach problems ,food sensitivity

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    1. Hello Beatriz, i noticed that too… and to be honest.. I only see two reasons: either we need even more views on the website to get it ranked / either there are some “keywords” which are banned from Google ranking (like automatic censorship)… Let’s share the full URL address with them so that they can access the website. Btw, what is your story and are you present with us on the discord?

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  14. Brazilian 33 years old I was infected in 2021 after receiving oral sex from an unknown woman, I was never healthy again, I was tense with kidney problems and several others

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    1. Hey. I’m Brazilian, 34 years old. I was infected in 2022. I would like to know how the studies are going so far. I have weakness, hair loss, belly noises, sleep and weakness, joint pain.

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      1. Hello Santiago, sad to hear you’re also contaminated. Can you join us on the discord and fill in the survey? This is the best way to understand the path of this contagious disease. On the discord, you’ll find all the details information about the community and the study. In short, the study has not yet started as we need to have much more people responding to the survey to be able to enter in contact with them and give them details about how to participate to it.

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          1. Go to the « who are we ? » section of the website. There you’ll find the link to the discord

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    2. Thank you for your testimonial Onezk. By your pseudo, I know you’re active on the Discord as well which is a very good thing in order to convince the medical authorities that a new pathogen is spreading fast…

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    3. Olá. Para participar do estudo inicial é necessário investir financeiramente? Estou interessado, pois estou bastante doente. Ou é algo que devemos ser voluntários?

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  15. I am 60years old Japanese. I was infected the pathogen 6years ago from a woman. I am suffering from many symptoms which you describes here.
    5years ago, I had a PCR for mycoplasma fermentans and was + on IgE & IgG.
    It’s a very difficult disease.
    You may visit this site and I hope you may get some knowledge about fermentans.
     http://www.mbiotech.org/English/mycoplasma%20precision%20preventative%20medicine%20English.html

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    1. Hello Kei, this is indeed not the first time we have contact with someone from Japan about this disease. Can you join us on the discord and fill in the survey? This is the best way to understand the path of this contagious disease. We would also be glad to hear about the test you performed concerning Mycoplasma (In which hospital/lab was it? Do you receive a treatment for that ? …)

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    2. In Japan, it has already been proven that the causative bacteria of the disease is mycoplasma fermentans. A cure for Mycoplasma fermentans should be researched. If patients want to find out the cause of their disease, they should take a PCR test for Mycoplasma Fermnetans. This will give you an idea of ​​the direction of treatment.
      https://www.sciencedirect.com/science/article/abs/pii/S1045105607000802?via%3Dihub
      http://www.mbiotech.org/mycoplasma1.html
      http://www.mbiotech.org/Chinese/index.html

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      1. Hello Kei, this is very interesting. As I don’t understand Japanese… I used translator and it seems to match all symptoms we have. Could you help us out taking contact with the founder of this company? Mail address ? Thank you

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        1. As Kei is stating. This is not a unknown pathogen you are suffering from. As i stated on the other website, the culprit could be Mycoplasma Fermentans. There are antibiotics which may cure you and may not. Stop all this madness. Go test for yourself, Do not make fundraisers for this. MANY people have fermentans in their bodies with absoluteky no symptoms. Its a bacteria which operates best in people with low immunity.

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          1. I would be glad to know more about this. Have you tested yourselves for it? Can you share the results? Where have you done it? Which hospital is treating you ?

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        2. It depends where in the world you are. Armin Labs ships test out. Current treatment for ANY mycoplasma is not so broad. Tetracyklines seems to work pretty good in some patients.
          I myself got Doxycyclin treatment for 21 days.
          I will not go further in private details on which hospital.
          All I’m saying you have to end this madness. Mycoplasma will NOT kill you. This stress and paranoia will definitaly kill you sooner.
          Order a test. Take the test. If positive get treatment. If negative – treat your symptoms.
          You folks have created a WEBSITE for this, connections to doctors, other people. Totally unneccesary. Get tested.

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          1. it is because of such opinions that the matter cannot move forward. One is about mycolpasma, another is about borreliosis, the third is about mold. Enough of such self-conclusions.

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          2. To Anonymous: Totally agree. This madness has to stop. Self diagnosing yourselves with multiples diagnosis. Get tested according to symptoms. If everything is negative, MOVE ON! If cbc show minimal abnormalities, you probably will be okay. Alnost everyone in the northern hemisphere suffers from lack of vitamin D. Any sort of virus can trigger an auto immune disease,as can bacteria. This is probably the culprit in all this. There is no cure for AID, but there is treatmdnt thst helps. I myself had MULTIPLE hiv symptoms and still have. But Im not going to die of it.
            Instead of using google, try ChatGPT.
            Stop this endless madness.

            All the best to all of you.

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          3. Hello, actually the main point in the unknown pathogen we are infected with is that it’s contagious and creating a bad quality of life. As most of us are infected since a few years, we don’t know if it would not kill us after more years or shorten dramatically our life expectations. This is why we would like to make the world known about this pathogen in order to avoid other to be infected… and to improve the quality of life of those already infected.

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          4. To thomasvanhoye:
            If you keep testing negative for everything including mycoplasma, there is no infection. Get on with your life. Test for ANA.

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    1. Hello, what is your story? Don’t hesitate to share it here, to fill in the survey and to join us on the Discord.

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